16 weeks pregnant/update on TJ

Ok so I STILL haven't gotten around to making a separate blog for this baby. What I think I'm going to do is wait til the amnio results come back and we know if it's a boy/girl and if baby is healthy... I'll do as I did with TJ's blog originally which is take what I've written on other sites and paste it together so that I have a fluid timeline.

I'm 16+ weeks pregnant and have my amnio coming up wednesday. I've been having an issue of nearly blacking out lately. I'll be walking around or standing and all of a sudden be dizzy/tunnel vision/far away hearing and start to fall over... so I have to lean on something or sit and splash my face with water. I also try to drink soemthing. but my dr's haven't told me if it's low blood suger, or heat or whatnot... i'm completely exhausted all the time too! lol.

Baby is moving around lately and I began feeling kicks and stuff at 16w mark a few days ago. I'll post about my amnio/level2 ultrasound after I have it.
my doctors also referred me to a pain management doctor to have them find a treatment for my back pain. So I've got to wait for that referral to go through.

TJ is doing well. We are working with a bumbo and little man can sign Mama now. We are fairly certain that he's teething right now. Because everyday he gets fussy for HOURS. the only thing that stops it is tylenol. We can feel 2 little bumps trying to pop up. One on his lower jaw one of the upper...

HUBBY GOT A PROMOTION! He's now DEPARTMENT MANAGER where he works. It's taken 2 years for him to get this position. It means a hefty raise and possibility of good bonuses every 2 weeks. (like $250 extra)

So we are doing well!

TJ Update~ Got hearing test back!

U/S at 12w4d!

So yesterday, June 16th (ok 2 days ago) we went in for TJ's ABR test and new tubes to be put in and his ears cleaned.

We FINALLY got some encouraging news! We found out TJ has only Moderate hearing loss, so he's not profoundly deaf, only hard of hearing meaning that hearing aids may work for him and he might grow out of some of the hearing issues as his ear canals grow!

According to the dr. his hearing levels are 45 in one ear and 55 in the other... or according to my research he has approx %30 hearing loss in one ear and %45 in another. He will get to learn to speak and hear and say Mommy and Daddy! :) Since he had that surgery for the tubes, he turns his head and wakes up at noise! it's really cool! We're happy to know he can hear mommy's and daddy's voice!

Also, since he's been taking his tylenol orally, we decided to try some babyfood on him today and fed him some applesauce. He did SO great! he HATES the baby spoon for some reason.. a sensory thing I think, but he ate 1/3 jar of applesauce! he wasn't extruding it or anything. he'd actually swallow it! We haven't gotten the "official" ok on feeding him orally yet but his Speech therapist and OT both mentioned they think he can eat orally but would like to get the "OFFICIAL" ok from his gastrointerologist.

We also had an ultrasound for this little peanut growing in my belly and baby looks GREAT. I still measure on track for a Xmas Day miracle! We scheduled my amnio for July 14th so wish me luck that we have a healthy baby (GIRL!) lol.
I'll know approx 7-10days after the amnio if it's a girl and if there are chromosome problems. then 8 weeks after we'll know if baby has my skin disorder. We're excited and a bit nervous.

We got a GREAT sonographer (sp?) who played with the U/S machine for about 30 min showing us 3D and blood flow and everything. He wasn't looking for more than CRL length and est. gest age. that was it.

he said baby looks great and we got to see him or her kicking and moving around.

10 Weeks Pregnant!! Update on TJ

Well, this week I am 10 weeks pregnant. I'm currently waiting for a referral to go through to the maternal fetal medicine clinic. I rented a baby doppler from Babybeats.com and got it the day I turned 10 weeks. The first day I tried I couldn't find the heartbeat, but I tried again the second day and found it! 150's and strong!!!!

We took TJ to go see his pediatrician a couple days ago (friday) and she said he's doing GREAT and to keep doing what we're doing. he is 23 3/4 inches long and 12lbs 1 oz!!!!!!!!!!

He kept trying to roll off the table on her. He had to get some of his 9 month shots... poor little guy had to get 3 different injections! he really hated it. he's been very fussy ever since.

he's also gotten a new habit of just crying for about 15 min. before falling asleep when he's tired. he cries like somebody's beating him! lol. So we have to leave him in his crib to cry it out for a bit and then fall asleep. As soon as I get in to see MFM at loma linda, I'll start the new blog. I just want to be sure this baby is doing well..... and I want to have info to actually blog about! lol..


Cindie

Saw Little bean's heartbeat!!! Next blog saga will be soon!!

Well TJ is doing WONDERFULLY!!! He's begun rolling.. almost all the way over, and playing the "kicking game" where he tries to kick his diaper off when we try to change him.

Today I had a U/S to see if we had a viable pregnancy.... they said I'm about 6w3d... I SAW A HEARTBEAT!!!! I'm so excited. Based on my past history my OB is sending me back to the high risk clinic at Loma Linda.... so I am happy to go to doctors who KNOW me!

I'm gonna have 2 blogs! Baby #2 is due in Dec. 09

This is TJ on Easter! SO CUTE..... and below it the BFP I got yesterday!

I found out yesterday that DH and I are expecting baby number 2. As of right now based on LMP I'm due Dec. 20th a day after my little brothers birthday.

I plan on starting a second blog to add as soon as the pregnancy is verified as viable. I tested on CD 25-32.... the night of CD31 I got a negative. The next morning for no particular reason I took my last test... It was a Digital EPT... I got a positive. We are super excited.

We want TJ to have a sibling close in age to him. We feel that he'll have a friend to play with as he grows up and so will his sister or brother. Also we hope that he'll be challenged to learn more. I have tried to NEVER mentally place limitations on what I think TJ can and will be able to do. He already is learning so much. (he knows to fuss if he wants attention!) and a bunch of other stuff. Health wise he's doing GREAT. his chest is healed up, he got a Mickey button a couple days ago. and he's gaining weight!)

We are really hoping for a daughter, and after this baby I'm getting an IUD for 4 or 5 years. Then we'll have 1 more.

The Genetic counsellor told me when I got my positive amnio results for down syndrome with TJ that I have a 1/100 chance of D/S now.

HOWEVER~ I was also told that it's very rare to have 2 babies with D/S unless you have a translocation. That form of D/S has around a %25 chance.

So far I'm only considered 4 weeks along (actually 2 but they count you as being pregnant from the day of your last period) I get my blood test results back this afternoon to get my exact levels.

Unfortunately when I called the OBGYN's in my area they told me that since I was so high risk with TJ (I personally had dehydration and HG. but they count me higher risk because of TJ having D/S and EHK)

They said that they'd just refer me to MFM at loma linda. (maternal fetal medicine)

So When I went by my Primary Dr.'s office yesterday for the paperwork I asked if he could just refer me instead of waiting for an obgyn to do it.

DH and I are excited but nervous because with everything that happened with TJ. We're praying that we get a happy, and healthy baby. We will love this baby just as much as TJ and I do NOT plan on playing favorites with them!

So far I've delt with HORRIBLE bloating, and some mild cramping as my main symptoms... also I've been running warmer than usual even tho I have no fever. (Carlos actually noticed it a couple days before my bfp)

I am starting this pregnancy out as healthy as possible. I'm taking only tylenol for headaches and backaches unless my OB tells me other wise or finds a safe treatment for my back.

and I'm taking extra calcium, 1mg folic acid, iron, and prenatals(normal amt) because with TJ my calcium was depleted as well as some of my other minerals and vitamins. I'm also trying to drink more water starting right away.

After this post I'll have 2 blogs going, 1 for TJ and one for this pregnancy and the baby.

Keep my family in your prayers that we can be able to welcome a healthy baby into this world.

Because as long as this child is healthy, Carlos will only have to take 1 maybe 2 weeks off work, and we'll be able to actually SURVIVE the holidays. :) last year he took 7 weeks off and wound up not getting paid for ANY of it due to a mix up with his disability coverage. And I'll continue receiving income too. We wanted to be sure we were prepared for this next baby before we have him or her (HOPEFULLY HER)

Thanks and I hope all of you will continue to follow this blog as well as the new one! I'll start that in about a week or so!

New post SORRY I haven't been on in a while.

Well, TJ's doing great this week. Carlos and I went to Arkansas for my best friend's wedding as well as to see my father.
Tyler's Gtube ports popped off the day we got back, so I took him in to get it fixed and all is well now.
he's been showing ALOT more attention and playing with his toys and stuff more. He likes to tough ppl and things. which is AWESOME.

He's FINALLY on only 1 true med, his thyroid med, and a bunch of vitamins to help him gain weight.
I've got some new pictures to post and will add them soon.

TJ's wound is healing GREAT. It's nearly closed, and just needs a tiny bit of packing. I can't wait til it's fully healed. We've still got a while til his sternum is healed completely.

CPS is still giving us issues so I'm writing the worker a letter telling her to leave us alone, as well as not taking any crap from them anymore.

TJ is HOME!!!!!!!!!!!!!!!

TJ is home, and he's doing well. I'm not going on a whole lot of sleep but what I got was good sleep so I feel pretty rested.
I had to learn how to care for a picc line and was taught in an emergency how to put a new dressing. I had to be taught to clean the port for 30 sec. with an alcahol wipe.
flush w/saline (prefilled syring)
give his first antibiotic,
Flush again,
2nd antibiotics,
Flush again and flush with 2 ml's of heparin (from a 5 ml prefilled syringe)
He's also on some protein poweder and an Oil also.... And they gave me apump to use with his Gtube so we are using it at night, (he has an apnea alarm on, it'll ring if he were to throw up)
and it's already preset.
the REAL hard thing was remembering the A) apnea monitor, and B) how to do the picc meds correctly using protocol.
it turns out that IEHP doesn't pay for dressings for his chest but his nurse (FINALLY One who liked me) ordered a whole lot of gauze and Coban. They gave me a TON of supplies. Give me a bit to find my camera, since it got lost in the madness yesterday!
and I'll post the pics of his last days in the hospital and now here at home! lol Thanks alot for all the prayers!

The journey isn't over tho... it's only begun because he's not out of the woods yet AND he's not grown up!~